Il 27.05.2019

How to Comply with the Ethical and Legal issues in Research Institutions: a Focus on General Data Protection Regulation (GDPR) in Scientific Research

Relatori: Prof. Giovanni Comandé – Sant’Anna School of Advanced Studies, Prof.ssa Cristina Amato – University of Brescia, Dott. Mario Guglielmetti - European Data Protection Supervisor, Dott. Thierry Bourgeois - Directorate-General for Research Directorate C – Science and Society Unit C3 – Ethics and Science, Dott. Gianclaudio Malgieri - VUB, Dott.ssa Fosca Giannotti - CNR, Dott.ssa Francesca Torelli - Chair of the SSSA and SNS Joint Ethical Committee, Prof.  Michele Emdin – Sant’Anna School od Advanced Studies, Dott.ssa Concetta Tania Di Iorio - University of Tor Vergata, Dott.ssa Silvia Scalzini -  Luiss Guido Carli, Dott.ssa Danielle Borges – Sant’Anna School od Advanced Studies, Dott.ssa Denise Amram – Sant’Anna School of Advanced Studies and Scuola Normale Superiore, Dott.ssa Monia Gentile – Sant’Anna School of Advanced Studies

Data Protection • Research • Ethics • Case Studies

9.30 – 10.00 Registration

10.00 – 10.30 Greetings and opening remarks

10.30 – 11.15 Keynote. GDPR and research activities: the risks of non-compliance

11.15 – 11.30 Q&A

11.30 – 12.45 What is the Impact of GDPR on Universities and How to Cope with It?

Open Discussion

12.45 – 13.45 Lunch Break

13.45 – 14.45 Privacy by design e privacy by default in research activities

14.45 – 15.00 Q&A

15.00 – 16.00  Discussing the Legal and Ethical Draft for Consent and Automated Decisions for EU Research Projects from PANELFIT Project,

SoBigData Research Infrastructure: tools for Open and responsible Data Science.

16.15 – 18.00 Hand on Discussion and Case Studies: Ethical Issues and problems in research units.

16.00 – 16.15 Coffee break

16.15 – 18.00 Hand on Discussion and Case Studies: Ethical Issues and problems in research units.

  • Ethical and Legal Issues in research: the experience of the joint Ethical Committee of the SNS and SSSA
  • Ethical Issues in Clinical Research
  • BRIDGE Health a sustainable and integrated EU health information system for both public health and research purposes
  • The Legal and Ethical dimension in Artificial Intelligence Research: constrains or opportunities?
  • Ethical Issues in Research with Migrants
  • Towards an Accountable Ulysses: the Role of the Data Protection Officer in the Universities
  • Exploitation of Research Results and Knowledge Transfer


18.00 Farwell, networking, and end of the Workshop.



Il 27.05.2019

From 09:30
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